Tuesday, October 16, 2007

"Six" more weeks to go

We've been six weeks away from having Trystan's colostomy taken down/repaired/removed/gone for something like 4 months now. The end is in sight, but for some reason that sight never seems to get much closer. I'm getting tired of waiting for this pot, but I'm continually assured that it will, one day, actually boil. At birth, we were told that he would probably be "all fixed" by 4.50-5 months of age. Before his last surgery (both times it was scheduled), we were told it would be about 6 weeks later when he would be "done".

We had another follow up with surgery this morning-the 3rd since Trystan's last surgery, his anoplasty (Honestly, I doubt I'm spelling that right, but the spell check is suggesting "amplest" as a correction...hah). We went back 1 week post-op for them to remove his catheter. At 2 weeks we had another visit and were given instructions and supplies for a dilation treatment that we have to do at home (A description of the same general process is here, if you really want to know). Today, at 4 weeks, another visit. The doctor said today that the final surgery will be in about 6 more weeks, though by the current schedule of dilations, he'd be ready in 4 by my calculation (what do I know).

Getting rid of the colostomy = baby who can poop in a diaper like every other baby = fewer medical supplies, explanations, worries about driving and traveling. It also means that we could hire (or beg) babysitters (or use a drop-off service like at the Y) without providing "training"
first (right now, the only folks who could really watch him for very long are the workers at daycare--even my In-Laws haven't tried changing his ostomy pouch). It will mean an increase in our use of baby wipes and diaper rash cream, but also means he can take a bath whenever we
feel he needs one, not just when his pouch needs a change (sometimes the things last hours, sometimes for days at a time, no predicting...), and that we can use baby soap and lotion anywhere on his body that we please (the oils in it keep the pouches from sticking, so we have to be really careful). There may even be swimming lessons in his future (I have the 6-12 month size swimsuit all ready to go, just in case!)

Only "six" more weeks.

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