Trystan's surgery to close his colostomy is in about two weeks. I can hardly wait. I am not looking forward to seeing him in pain post-op, nor having to feed a mechanical baby (aka breastpump) instead of him for a couple of days afterwards. His roughly week-long hospital stay will be hell on our family--Charlotte developed some real fears last time after I spent the entire stay at the hospital with Trystan (that time he could nurse as soon after surgery as he felt up to it). But I am looking forward to an end of little pouches adhered to his tummy, to carrying a bag of medical supplies with us in the diaper bag, of having to order what are really diapering supplies from a medical supply house. I'm tired of worrying about whether a bag will come off overnight while he sleeps, or will start leaking while he's snuggled in our bed (we never did get a waterproof mattress cover for our bed, and really don't want runny poop soaking into our sleeping place). I'm tired of being limited on potential babysitting options, of having to explain to curious strangers who see me emptying his bag at a public changing station. I'm tired of whining about all of this on this blog, but what good is having a place to vent and whine if you don't use it?
I had to call the medical supply place this morning to order one more set of bags for him..they come 10 to a box, and we have about a dozen left at home. If the darned things behave, they can last 2-3 days apiece. When they don't, we can go through 4 in a day until we get a good seal. I'm not a gambler, and I don't want to run out two days ahead of time and have to run all over town trying to find more in a hurry. I asked them if they would take back unused ones, or an unopened box should we be so lucky, and was told that they didn't do either. The surgery office said that they could take them, even from an opened box, as they have patients with limited resources and poor insurance who have trouble obtaining supplies or paying for them. That thought was sobering--I once priced the things and they cost around $30-50 per box of 10...imagine paying that every 10 days or so on top of diapers and all the other baby stuff you need. Then there are protective pastes and powders, and the dressings for his other fistula (mostly gauze and tape, but you go through that stuff fast, and sensitive skin demands fancier stuff than typical first-aid supplies). Once again, I am thankful, thankful, thankful to have good insurance. All we pay for are normal baby diapers and wipes like we would be for any other kid.
I guess we'll have to buy a lot more wipes soon.