I intended to post an update earlier this week, but couldn't find a wireless signal at the hospital. I had a copy of the configuration directions, but the best configuration in the world doesn't help when the radio waves can't pass through concrete walls.
Trystan had his surgery this week. This one is callled the "pull-through", or the "anoplasty" or the "PSARP". Trystan now has an anus. (That is a word that I never used to ever really say or type, and now it seems to come up in conversation alot....). The surgery was long--3 or 4 hours. His large intestine was connected to his actual bladder and not one of the tubes draining from it, like they originally thought from the x-rays. He held up great, and was allowed to nurse Monday night as soon as he was awake enough. He was pretty sore--the incision went from the base of his scrotum to a couple of inches past the new opening. We tried really hard not to move him too much Monday and Tuesday morning--I gave myself an odd backache trying to stand next to his hospital crib and nurse him without holding him overnight Monday. That probably looked pretty funny, but he wanted the comfort and I didn't trust moving him that much.
One of my sisters came into town to help us out. She couldn't make it till late Monday, but spent Tuesday and Wednesday with me at the hospital. She was a lifesaver. My husband had to work much of the week, so she helped keep me sane, and was a much-needed second pair of comforting arms for Trystan. He spent most of Tuesday and a lot of Wednesday cuddling with one of us while we watched TV and chatted.
By Wednesday night, Trystan started feeling really good and found his energy. He started smiling at everyone in sight, rolling around his crib and vigorously playing with his toys. That afternoon, he played so much that he pulled his IV out of his foot (bleeding all over his aunt's lap in the process). Since he was eating and not needing the extra fluids, they didn't replace the IV and just switched him to oral antibiotics instead of the IV ones. Later that afternoon, he pulled the tape off that was holding his catheter tube to his leg. The doctor decided that we could remove the large tube and collection part from the cathether, and rig up a double-diaper system. Basically, he wears one diaper with a hole cut in the front where the tiny catheter tube is threaded. The open end of hte tube is in a second diaper, worn on top of the first--that keeps the catheter in place, protects his still-tender incision area, and gives him the freedom to be a rolly-polly high-energy curious baby safely. It makes it a bit hard to button a sleeper over (I will have to wash a couple of the next size up to wear the next couple of days). To change him, we should mostly have to change just the outer diaper until the inner one gets messy.
We came home this morning. He still has the catheter and will until next Tuesday as they wait for his bladder to heal before letting it handle its normal duties. That will make caring for him a bit trickier, since I don't want to ask daycare to handle that as well (its no worse than a regular diaper change, but he's already a special case with the colostomy). We (and our surgeon) weren't expecting that going in.
It's really nice to be home right now. Trystan's taking his best nap of the week, especially since no one will wake him up to take his temperature or check his bottom or just make loud noises in the hall outside his door. I am really looking forward to sleeping in my own bed tonight. I also have seen Charlotte for only about an hour all week, and I'm looking forward to seeing her this afternoon!